Listed below are books and videos recommended by members of the Centre County Down Syndrome Society. Items in blue text are available from the CCDSS Book/Video Loan Program.
- Alix, N., & Martin, A. (2012). Just Cate: A Dual Memoir by Lifelong Friends.
- Just Cate is a dual memoir of two lifelong friends and the spirited child with Down syndrome who changes them forever
- Hale, N. (2011). Down syndrome Parenting 101: Must Have Advice for Making Your Life Easier. Bethesda, MD: Woodbine House.
- Down Syndrome Parenting 101 offers inspired takes on a host of important issues, from learning to recognize and celebrate your child’s personality and gifts to finding a great teacher for him, and from insisting your child pull his own weight to giving your child his space as an adult. The author–equal parts mentor, humorist, enthusiast, and realist–takes readers by the hand and walks them through the various life stages, experiences, and people they will encounter with their child including: getting to know and fall in love with your child, interacting with medical professionals, literacy, discipline, school, transitioning, and independence.
- McGuire, Dennis and Brian Chicoine. Mental Wellness in Adults with Down Syndrome. Bethesda, MD: Woodbine House. 2006.
- Directors of the Adult Down Syndrome Center in Illinois share their experience in working with more than 3000 patients since 1992. This book addresses specific disorders and diagnoses, and offers treatment ideas for both professionals and caregivers.
- CCDSS Parent: This book really helped me to understand so many of my son’s behaviors.
- Lambke, B., & Lambke, T. (2011). I Just Am: A Story of Down Syndrome Awareness and Tolerance. Chandler, AZ: Five Star Publications
- This is a story about a young man with Down syndrome. These are his thoughts and feelings regarding his disability. It is written with help from his dad and much love.
- Lynard-Soper, Kathryn (Ed.). Gifts: Mothers Reflect on How Children with Down Syndrome Enrich Their Lives. Bethesda, MD: Woodbine House, 2007.
- In this candid and poignant collection of personal stories, sixty-three mothers describe the gifts of respect, strength, delight, perspective, and love that their child with Down syndrome has brought into their lives. The contributors to this collection have diverse personalities and perspectives, and draw from a wide spectrum of ethnicity, world views, and religious beliefs. Some are parenting within a traditional family structure; some are not. Some never considered terminating their pregnancy; some struggled with the decision. Some were calm at the time of diagnosis; some were traumatized. Some write about their pregnancy and the months after giving birth; some reflect on years of experience with their child. Their diverse experiences point to a common truth: The life of a child with Down syndrome is something to celebrate.
- Skallerup, S. (2008). Babies with Down syndrome: A New Parents’ Guide (3rd Edition). Bethesda, MD: Woodbine House.
- A comprehensive guide for new parents, covering all aspects of care for babies and young children.
- Described on book cover as “The complete, compassionate, guide to your child’s first five years.
- Deedah (Video)
- Deedah is a documentary appropriate for all ages. The film is educational and encouraging, ideal for expectant mothers and new mothers of children with Down syndrome, parents and siblings of children with Down syndrome, elementary school teachers and their students, and Pediatricians, nurses, geneticists and other care takers. http://www.deedahandme.com/
- CCDSS Parent: This is the real life story of a boy who has Down syndrome, Jonathan, told through the eyes of his sister, Charlotte, (whom he calls Deedah). I first saw this movie at the NDSC convention in Florida in 2010 and thought it would be a wonderful classroom tool to explain to students what Down syndrome is all about on a relatable level. It seems to have given our son’s classmates an introduction to Down syndrome. It has also made them more comfortable with asking questions and being friends with our son.